Join Daniel Barth-Jones for a discussion on the risks of privacy issues relating to the re-identification of data with insights into how we can reduce potential harms and assuring that data, particularly health data, is used for the public good.
About Dr. Barth-Jones
Daniel Barth-Jones, PHD, MPH, is an infectious disease epidemiologist who specializes in computer simulation of the transmission and public health control of HIV and other infectious disease epidemics. His primary research interests include the epidemiology of HIV and sexually transmitted diseases, theoretical population vaccinology, Phase III HIV vaccine trial design, and health economic evaluations of public health policies for vaccination and preventative intervention programs. His research on HIV vaccine modeling and HIV vaccination strategy/policy development has been sponsored by the U.S. Centers for Disease Control (CDC), the International AIDS Vaccine Initiative (IAVI), the Joint United Nations Program on HIV/AIDS (UNAIDS), and the World Health Organization (WHO). Dr. Barth-Jones has conducted research in collaboration with the Ministries of Health in China, Brazil, Peru, Kenya, and Thailand, and he has been a frequent scientific advisor to WHO, UNAIDS, and IAVI. Dr. Barth-Jones is also a nationally recognized expert in the area of statistical disclosure analysis and control, where his work focuses on the development of statistical and geospatial disclosure control methodologies to help assure the confidentiality and privacy of healthcare data in compliance with the HIPAA Privacy Rule. He has given scientific presentations and conducted educational training on HIPAA Privacy regulations to numerous healthcare information organizations, healthcare delivery organizations, state and federal agencies and organizations, and within academia.
About Ann Waldo
Ann Waldo is the Principal in the boutique law firm of Waldo Law Offices, PLLC, in Washington, DC. She provides legal counsel, compliance strategy, contracting, public policy, and government advocacy regarding privacy and health information management. She focuses on both HIPAA/HITECH and consumer health privacy. She is particularly fascinated with novel issues involving health data and innovative technology. She has counseled a state Health Information Exchange, has been a grant advisor to the Office of the National Coordinator on Health Information Technology (ONC), has served on a Certification Commission for Health Information Technology work group, has been an advisor to a Harvard information technology grant, and has served on the Consumer Empowerment workgroup of the federal Health Information Technology Policy Committee. An active participant in the Healthcare Leadership Council’s Confidentiality Committee, she currently serves as a Key Advisor to the Health Data Exploration project supported by the Robert Wood Johnson Foundation.