Agenda
Tuesday, May 2nd 2017
7:45 AM
Breakfast & Networking
8:30 AM
Welcome
Kevin Patrick
UC San Diego
Steve Downs
RWJF
9:00 AM
Invited Talk – “Representing the Person” – What does it mean?
Matthew Bietz
UC Irvine
Jose Gomez Marquez
MIT
Donna Spruijt-Metz
USC
Erik Johnston
ASU
Elaine Nsoesie
University of Washington
10:00 AM
Presentation: VROOM with Larry Smarr
Larry Smarr
UC San Diego
Gary Wolf
Quantified Self
Moderator/Discussant
10:45 AM
Announcement of Poster Honorees
10:50 AM
Break & Personal Health Data Poster Session
11:30 AM
Invited Talk – Representativeness in Practice
Kevin Patrick
UC San Diego
Rob Knight
UC San Diego
Nitya Kanuri
Crisis Text Line
Robert Winn
University of Illinois, Chicago
Sean Young
UCLA
12:30 PM
Lunch & Poster Session Continued
1:30 PM
Updates on recent HDE Initiatives & Related Projects
Andrea Wiggins
University of Maryland
Citizen Science & Personal Health Data
Michelle De Mooy
Center for Democracy and Technology
Data Deletion & Personal Health Data: Time for Action?
Camille Nebeker
UC San Diego
Connected and Open Research Ethics
2:15 PM
Invited Talk – Tools, Resources & Communities
Jerry Sheehan
University of Montana
Pete Beckman
Argonne National Labs
Grace Simrall
City of Louisville
Madeleine Price Ball
Open Humans Foundation
Sean Munson
University of Washington
3:15 PM
Wrap-up: Looking to the Future
Kevin Patrick
UC San Diego
3:45 PM
Break
4:15 PM
Keynote Introduction by Ramesh Rao
4:30 PM
Keynote Address: Dr. Chris Gibbons, FCC
Dr. Gibbons is the Chief Health Innovation Adviser to the Federal Communications Commission’s Connect2Health Task Force. He is also the Founder & CEO of The Greystone Group, Inc., a digital health innovation company and an adjunct Assistant Professor in the department of Health Sciences Informatics at Johns Hopkins. Previously Dr. Gibbons was an Associate Director of the Johns Hopkins Urban Health Institute, and an Assistant Professor of Medicine, Public Health and Health Informatics at Johns Hopkins University. He is a published, author and international speaker who has authored over 75 books, book chapters, research manuscripts, monographs and technical reports. Dr. Gibbons obtained his medical degree from the University of Alabama and then completed residency training in Preventive Medicine, a basic science research fellowship and a Master of Public Health degree all from Johns Hopkins.
5:30 PM
Evening Reception
Wednesday, May 3rd 2017
HDE Second Annual Data Dive
Join us for exploration and discovery with a variety of data sources in this workshop/hackathon format. Data specialists will be on hand to walk us through data sets and demonstrate tools for analysis and visualization. This year, we are offering free American Gut Project* kits to the first 50 individuals who sign up. Be sure to sign up soon: participation is limited and on a first-come-first-served basis.
*We will mail kits to participants upon registration. We encourage you to submit your kit samples early so that you can receive your results in time for the data dive!
