Tuesday, May 2nd 2017

7:45 AM

Breakfast & Networking

8:30 AM


Kevin Patrick
UC San Diego

Steve Downs

9:00 AM

Invited Talk – “Representing the Person” – What does it mean?

Matthew Bietz
UC Irvine

Jose Gomez Marquez

Donna Spruijt-Metz

Erik Johnston

Elaine Nsoesie
University of Washington

10:00 AM

Presentation: VROOM with Larry Smarr

Larry Smarr
UC San Diego

Gary Wolf
Quantified Self


10:45 AM

Announcement of Poster Honorees

10:50 AM

Break & Personal Health Data Poster Session

11:30 AM

Invited Talk – Representativeness in Practice

Kevin Patrick
UC San Diego

Rob Knight
UC San Diego

Nitya Kanuri
Crisis Text Line

Robert Winn
University of Illinois, Chicago

Sean Young

12:30 PM

Lunch & Poster Session Continued

1:30 PM

Updates on recent HDE Initiatives & Related Projects

Andrea Wiggins
University of Maryland

Citizen Science & Personal Health Data

Michelle De Mooy
Center for Democracy and Technology

Data Deletion & Personal Health Data: Time for Action?

Camille Nebeker
UC San Diego

Connected and Open Research Ethics

2:15 PM

Invited Talk – Tools, Resources & Communities

Jerry Sheehan
University of Montana

Pete Beckman
Argonne National Labs

Grace Simrall
City of Louisville

Madeleine Price Ball
Open Humans Foundation

Sean Munson
University of Washington

3:15 PM

Wrap-up: Looking to the Future

Kevin Patrick
UC San Diego

3:45 PM


4:15 PM

Keynote Introduction by Ramesh Rao

4:30 PM

Keynote Address: Dr. Chris Gibbons, FCC

Dr. Gibbons is the Chief Health Innovation Adviser to the Federal Communications Commission’s Connect2Health Task Force.  He is also the Founder & CEO of The Greystone Group, Inc., a digital health innovation company and an adjunct Assistant Professor in the department of Health Sciences Informatics at Johns Hopkins. Previously Dr. Gibbons was an Associate Director of the Johns Hopkins Urban Health Institute, and an Assistant Professor of Medicine, Public Health and Health Informatics at Johns Hopkins University. He is a published, author and international speaker who has authored over 75 books, book chapters, research manuscripts, monographs and technical reports. Dr. Gibbons obtained his medical degree from the University of Alabama and then completed residency training in Preventive Medicine, a basic science research fellowship and a Master of Public Health degree all from Johns Hopkins.

5:30 PM

Evening Reception

Wednesday, May 3rd 2017

HDE Second Annual Data Dive

Join us for exploration and discovery with a variety of data sources in this workshop/hackathon format. Data specialists will be on hand to walk us through data sets and demonstrate tools for analysis and visualization. This year, we are offering free American Gut Project* kits to the first 50 individuals who sign up. Be sure to sign up soon: participation is limited and on a first-come-first-served basis.

*We will mail kits to participants upon registration. We encourage you to submit your kit samples early so that you can receive your results in time for the data dive!