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Organizational Members

Individual Members | Organizational Members

Click on each organization’s name to view details.

Alliance4Health

Contact: Sherry Reynolds <info@alliance4health.org>

Sector: Medicine/Health Care

Keywords: Design, Medicine / Clinical Health, Public Health, Behavioral Science, Health Services, Consumer Devices, Consulting, Social Media, Patient Centered Design

 

National patient centered design consulting firm.

Center for Democracy and Technology

Contact: Michelle De Mooy <mdemooy@cdt.org>

Sector: Non-profit

Keywords: Law / Policy, online privacy, consumer privacy, free expression, net neutrality, health privacy, security, surveillance

  

CDT is a champion of global online civil liberties and human rights, driving policy outcomes that keep the Internet open, innovative, and free.
As a 501(c)(3) nonprofit organization, we work to preserve the user-controlled nature of the Internet and champion freedom of expression. We support laws, corporate policies, and technology tools that protect the privacy of Internet users, and advocate for stronger legal controls on government surveillance.
With offices in Washington, DC and San Francisco, and an international presence in London and Brussels, CDT works inclusively across sectors and the political spectrum to find tangible solutions to today’s most pressing Internet policy challenges.

dataFascia Corporation

Contact: Jim Omura <jimomura@datafascia.com>

Sector: Medicine/Health Care, Corporate/Private Sector

Keywords: Engineering, Software, Medicine / Clinical Health, Data Services, Health Services, Open platform for innovation in health care

 

An open platform for hospitals called Topaz has been developed by dataFascia Corporation in collaboration with John Hopkins University, the Armstrong Institute, and the Gordon and Betty Moore Foundation. Topaz is designed to ingest data from all types of data sources (electronic health records, medical devices, and sensors) and to provide open Application Program Interfaces (APIs) that allow innovative medical apps to be developed by independent vendors.
Developing apps for the healthcare market is made much easier by having many data management tasks embedded into the Topaz platform. For example, embedded HIPAA-compliant security frees app developers from the complex requirements of protecting patient identification and associated data. Authentication of users is designed to leverage existing hospital access control systems. Topaz also enables the ingestion of medical data of all kinds, including real time data of up to one KHz bandwidth (e.g. EKG time series).
Topaz is designed to expand the development of innovative apps beyond ICUs to all parts of hospitals and clinics, as well as to home and mobile patients using mHealth devices. Based on Google’s modern open source Big Table design, it can scale to all types of data belonging to hundreds of millions of patients. To further innovation, Topaz will be made license-free through an open source license. This will allow the user community to continue development of new applications on the open Topaz platform and will foster the efficient sharing of these apps among healthcare providers.

Future of Privacy Forum

Contact: info@futureofprivacy.org

Sector: Non-profit

Keywords: Law / Policy

  

Institute for Healthy Air Water and Soil

Contact: Ted Smith <tedsmithphd@gmail.com>

Sector: Government/Civil Service, Non-profit

Keywords: Research, Law / Policy, Hardware, Medicine / Clinical Health, Public Health, Human-Computer Interaction, Data Services, Consumer Devices, Medical/Clinical Devices, Environmental Health, GIS of Disease

   

Our initial work has been at the intersection of breathing disorders such as Asthma and the quality of the ambient air in our community.

Intel Science and Technology Center for Social Computing

Sector: Academia/University

Keywords: Research, Design, Law / Policy, Computer Science, Behavioral Science, Human-Computer Interaction, Data Science, Consulting, Social Media, Online Communities

  

The Intel Science and Technology Center (ISTC) for Social Computing will establish a new paradigm for computing, moving from the personal to the social. Its hub is at UC Irvine, and its partner (“spoke”) institutions are NYU, Cornell University, Georgia Tech, and Indiana University. In collaboration with researchers from Intel, the Center undertakes research that will identify and develop theories, frameworks, and methods that will drive new scholarly research, new technology prototypes, new policy interventions, and new areas of innovation. The Center will facilitate research and collaboration at the vanguard of the emerging era of massively networked, mobile and cloud computing, while providing tools to understand and build on the history of earlier systems of social and technological interaction.
The ISTC for Social Computing is part of a network of Science and Technology Centers established by Intel in support of advanced research in information technology, including sister centers in Visual Computing, Pervasive Computing, Cloud Computing, Secure Computing, Embedded Computing, and Big Data.

localeikki

Contact: Tracy McMillan <tracy@localeikki.com>

Sector: Corporate/Private Sector

Keywords: Software, Public Health, Behavioral Science, Consumer Devices, Online Communities, physical activity, geolocation, active community environments

  

localeikki is an early-stage health technology company whose goal is to help people be active every day. We focus on connecting people to the built environment–specifically trails/multi-use paths, parks, & open space–to address the barriers of information and physical access in order to promote physical activity. Information about place, a community for connection and engagement, and technology to integrate physical activity into our daily lives, will help people live healthier lives.

Louisiana Public Health Institute

Contact: Rahul Jain <rjain@lphi.org>

Sector: Non-profit

Keywords: Research, Design, Law / Policy, Medicine / Clinical Health, Public Health, Behavioral Science, Data Science, Data Services, Health Services, Social Media, Online Communities, Health Promotion, Convener

    

LPHI, a 501 (c)(3) non-profit organization, plays various roles to fulfill its mission of “health for all” through policy and systems change by: 1) developing and expanding networks and partnerships; 2) collecting, analyzing and sharing information with partners and communities; and 3) providing resources and technical assistance to build community and organizational capacity. These roles include serving as a backbone organization; a trusted convener; a source of information about health issues and policies; a translator of data into useful information for decision makers; an influencer on health policies at all levels; a leader in designing, implementing and evaluating innovative programs; and a participant/partner in heath improvement initiatives and an added resource to government and other organizations.
The Health Services Research Portfolio is one of eight LPHI portfolios, and brings a “Layered Big Data Approach” to many of LPHI’s over 35 regional, state and national initiatives. The PCORI sponsored Louisiana Clinical Data Research Network as part of PCORnet, the Louisiana Community Health Database, and LPHI’s 509 (a)(3) non-profit supporting organization Partnership for Achieving Total Health, Inc. (the sustaining entity for the ONC Beacon sponsored Greater New Orleans Health Information Exchange) are three key projects that relate to Health Data Exploration themes: Particularly, we are invested in the investigation and application of informatics, governance, policy and engagement principles and concepts to incorporate personal health data into social determinants of health factors for improving person-centered population health outcomes, health services delivery, and comparative effectiveness research.

Open mHealth

Contact: David Haddad <david@openmhealth.org>

Sector: Medicine/Health Care, Non-profit, Other

Keywords: Design, Software, Computer Science, Data Science, open source, data integration

   

Open mHealth is building an open API platform that breaks down the barriers to integrating patient-generated digital health data and optimizes the clinical potential of data.

PersonalGenomes.org

Contact: Jason Bobe <jason@personalgenomes.org>

Sector: Non-profit

Keywords: Research, Law / Policy, Software, Human-Computer Interaction, Data Science, Data Services, Consulting, Online Communities

    

PersonalGenomes.org is a charitable organization working to generate, aggregate and interpret human
biological and trait data on an unprecedented scale. Our mission is to make a wide spectrum of data about
humans accessible to increase biological literacy and improve human health. PersonalGenomes.org’s pro‐
grams are informed by values encouraging greater transparency and collaboration between researchers
and the public.
Our programs include:
1. Global Network of Personal Genome Projects, which includes research studies in 4+ countries that collaborate on the development and evaluation personal genomic technologies and practices at increasing scales.
http://personalgenomes.org/organization/network
2. Open Humans attempts to break down health data silos through an online portal that will connect participants willing to share data about themselves publicly with researchers who are interested in using that public data and contributing their analyses and insight to it. We aim to make it easy for anyone to participate in research projects and to facilitate highly integrated, longitudinal health data.
http://openhumans.org/
3. Genomes, Environments and Traits (GET) Conference, an annual event that brings together leading thinkers to discuss how we measure and understand people and their traits. This event explores the frontiers of understanding about human biology and serves as an annual forum to debate the technical, commercial, and societal impacts. Each year we host world-class speakers and examine a host of issues at the bleeding (and spitting and swabbing) edge of knowledge.
http://www.getconference.org/

uMoitf Digital Health

Contact: Dr Rashmi Narayana <rashmi@umoitf.com>

Sector: Corporate/Private Sector

Keywords: Research, Hardware, Medicine / Clinical Health, Public Health, Behavioral Science, Data Services, Health Services, Medical/Clinical Devices, Consulting, Social Media, Online Communities, self-management, diigtal health, long term conditions

  

uMotif is a digital health start-up based in London, UK.
We work with provide digital treatments for health self-management. We currently work in range of long term conditions including Parkinson’s disease, diabetes, oncology and heart failure.
We will be running a large scale trial – the Big Parkinson’s disease (Big-PD)- project in 2015-16.
100,000 people across the world (Parkinson’s and controls) will use the uMotif digital self-management tools combined with device and wearable sensor data. The goal is to enable collection and donation of data by patients and the public, to improve treatment and self-care for Parkinson’s Disease.
We are keen to study the following themes – data donation guidelines, collecting high quality self-management data relevant for patients, clinicians and researchers and, technology facilitating collaboration between various stakeholders in the healthcare.

University of California, Davis

Contact: Nick Anderson <nranderson@ucdavis.edu>

Sector: Academia/University

Keywords: Research, Engineering, Law / Policy, Software, Hardware, Medicine / Clinical Health, Public Health, Computer Science, Behavioral Science, Human-Computer Interaction, Data Science, Data Services, Health Services, Consumer Devices

  

UC Davis is a leading medical and research University with centers for population health, policy, translational science, veterinary science, genomics and nursing.

US Green Building Council

Contact: Chris Pyke <cpyke@usgbc.org>

Sector: Non-profit

Keywords: Research, Design, Engineering, Law / Policy, Public Health, Data Services, green building, built environment, market transformation

   

USGBC and its community are changing the way buildings and communities are designed, built and operated.
We are made up of tens of thousands of member organizations, chapters and student and community volunteers that are moving the building industry forward in a way that has never been seen before.
We are a diverse group of builders and environmentalists, corporations and nonprofits, teachers and students, lawmakers and citizens that share the same vision of a sustainable built environment for all within a generation. Today we are 76 chapters, 12,800 member organizations and 193,000 LEED professionals strong.
USGBC’s mission is to transform the way buildings and communities are designed, built and operated, enabling an environmentally and socially responsible, healthy, and prosperous environment that improves the quality of life.

Vascular Cures

Contact: clara@vascularcures.org

Sector: Non-profit

Keywords: Research, Public Health

  

Vascular Cures is a 501(c)3 not for profit organization representing the millions of patients with Vascular Disease. We are the only organization working exclusively on breakthrough innovations to improve the lives of people with diseases of the vascular system outside the heart.
Project VOICE is one of Vascular Cures programs and the first project of the Vascular Innovation Summit. The goal of Project VOICE is to build the first online vascular community and integrated database of patient-centered and clinical outcomes.
All too often, patients are left out of the healthcare conversation. Existing medical guidelines for vascular health management do not consider patient input, and outcomes decline very quickly if treatment is not well matched to the individual situation. The reliability of current evidence-based outcomes analysis is weakened by inadequate patient reporting and feedback.
Vascular patients face many barriers to engagement and no vascular health community exists.
Patient-reported information and engagement will lead to improved vascular health and economic results. Digital health management tools (including mobile and web-based) will be used to create a platform of information from patients, clinicians and registries.

Vitality Institute

Contact: gchristie@thevitalitygroup.com

Sector: Other

Keywords: Research, Public Health, health promotion, chronic disease prevention, personalized health technology, research

  

The Vitality Institute is an action-oriented global research organization working to strengthen the evidence base about what works and what doesn’t work in health promotion and disease prevention. We are uniting leaders in both the public and private sectors to transform this evidence into action and create a healthier society. The Institute was founded in 2013 by Discovery Limited, South Africa’s largest health insurance company, as part of its commitment to health promotion and well-being programs that advance social good.
Our recent Commission on Health Promotion and the Prevention of Chronic Disease in Working-Age Americans worked to close the gaps in evidence and place the power of prevention at the center of health policies and actions in the US. It focused on preventing major non-communicable diseases—cancer, diabetes, cardiovascular and chronic respiratory diseases, musculoskeletal disorders, and mental illness—which threaten the economic competitiveness and the vitality of our nation. A component of the Commission includes working with the Institute of Medicine to host a workshop on the ethical, legal, and social implications of personalized health technology (Spring, 2015 TBC).

Individual Members | Organizational Members

Last updated April 13, 2015.